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Williams Syndrome Foundation


The Williams Syndrome Foundation was formed in 1980 with the aims of promoting research and funding, and providing help and support for families with affected children. The incidence of Williams Syndrome is approximately 1 in 18,000. The Foundation hears of increasing numbers of cases each year – the figure rises as awareness grows.

There are numerous benefits to becoming a member of the Foundation. Research helps current and future generations. There are Regional Contacts around the country – all are parents of WS children / adults – who keep in touch with local families, arrange meetings, organise awareness, fundraising, social and information events.

The Foundation organises regular online and national meetings as well as local gatherings for families. The Foundation offers funding for holidays for WS adults and families every year. The Foundation acts as support, information and advisory service and keeps members in touch through publications, events and a nationwide regional network. It also keeps a register of all known WS cases and provides access to professionals to promote research to improve the lives of the WS population.

The Williams Syndrome Foundation is a registered charity (no. 281014).

Memberships are £10 a year, but a free option is available.
National Organisation
Age range
Suitable for ages from 0 to 100 years
Referral route
No Referral Needed
For people with
  • Genetic Conditions
  • Learning Disabilities
Eligibility criteria
Open to Everyone
Provider category
Specialist Services - For those who require longer-term support


Williams Syndrome Foundation, Box 103, Charter House, Lord Montgomery Way
United Kingdom


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Last updated 26 March 2024