Huntington's Disease Association
How to contact this service
Description
The Huntington’s Disease Association (HDA) is a membership organisation. It aims to improve care and support services for people with Huntington's disease, educate families and professionals, and champion people's rights.
- Campaigns
- Information resources
- Magazine and newsletters
- Online Message Board
- Research
- Resources for Professionals
- Youth Engagement Service (HDYES)
Specialist Huntington’s Disease Advisory Service The Specialist Huntington’s Disease Advisor (SHDA) for Northamptonshire is called Scott Putman. He can be reached via 01865 419909 or [email protected]
Juvenile Huntington’s Disease If a person develops symptoms before the age of 20, this is known as Juvenile Huntington’s disease (JHD). The Huntington’s Disease Association's specialist JHD adviser is called Helen Santini. She can be reached on 01279 507656 or [email protected].
The Huntington’s Disease Association is a registered charity (no. 296453).
- Cost
- Free
- Locality
- National Organisation
- Age range
- Suitable for ages from 0 to 99 years
- Referral route
- No Referral Needed
- For people with
- Genetic Conditions
- Eligibility criteria
- Open to Everyone
- Provider category
- Specialist Services - For those who require longer-term support
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Address
Liverpool Science Park, IC1, 131 Mount Pleasant
Liverpool
Merseyside
L3 5TF
United Kingdom
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Last updated 22 March 2024