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Huntington's Disease Association

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The Huntington’s Disease Association (HDA) is a membership organisation. It aims to improve care and support services for people with Huntington's disease, educate families and professionals, and champion people's rights.

Specialist Huntington’s Disease Advisory Service  The Specialist Huntington’s Disease Advisor (SHDA) for Northamptonshire is called Scott Putman. He can be reached via 01865 419909 or [email protected]

Juvenile Huntington’s Disease If a person develops symptoms before the age of 20, this is known as Juvenile Huntington’s disease (JHD). The Huntington’s Disease Association's specialist JHD adviser is called Helen Santini. She can be reached on 01279 507656 or [email protected].

The Huntington’s Disease Association is a registered charity (no. 296453).

National Organisation
Age range
Suitable for ages from 0 to 99 years
Referral route
No Referral Needed
For people with
Genetic Conditions
Eligibility criteria
Open to Everyone
Provider category
Specialist Services - For those who require longer-term support

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Liverpool Science Park, IC1, 131 Mount Pleasant
L3 5TF
United Kingdom


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Last updated 22 March 2024