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Nystagmus Network

Nystagmus Network logo

Address

6 Lancaster Gardens, Kingston upon Thames, London
KT2 5NL
United Kingdom

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Description

The Nystagmus Network supports people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life. The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to. The Nystagmus Network is a registered charity (no. 1180450).
Locality
National Organisation
Age range
Suitable for ages from 0 to 100 years
Referral route
No Referral Needed
For people with
Sensory Impairments
Eligibility criteria
Special Educational Needs or a Disability (SEND)
Provider category
Targeted Services - Additional Support Needs
Disclaimer

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Last updated 02 April 2023