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Rare Disease UK (RDUK)

Rare Disease UK (RDUK) logo


Rare Disease UK is the national campaign for people with rare diseases and all who support them.

Since 2009, Rare Disease UK has campaigned for the development and implementation of an effective strategy for rare diseases in the UK and believe that patients affected by rare disease should receive the high quality services, treatment and support they need.

Rare Disease Day is an important international awareness day that takes place annually on 28 February (or 29 February in leap years). This date was chosen because 29 February is the rarest day of the year.

Rare Disease UK is a registered charity (no. 1114195).

National Organisation
Age range
Suitable for ages from 0 to 99 years
Referral route
No Referral Needed
For people with
Medical Conditions
Eligibility criteria
Open to Everyone
Provider category
Specialist Services - For those who require longer-term support


c/o Genetic Alliance UK, Creative Works, 7 Blackhorse Lane
Waltham Forest
E17 6DS
United Kingdom


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Last updated 02 May 2024