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Paediatric Cystic Fibrosis Service - NGH

Paediatric Cystic Fibrosis Service - NGH logo


The CF Service looks after children aged 0-18 years with cystic fibrosis (CF) in the community. 

The service works very closely with the CF Multi-Disciplinary Team (MDT), which includes a paediatric consultant, a physiotherapist, a dietician, and a psychologist. It also works with the Oxford Children's Cystic Fibrosis Network (OCCFN).

The CF service includes:

  • Visiting children at home to assess their clinical conditions.
  • Performing clinical procedures for children in their own homes (such as inserting continuous glucose monitoring sensors).
  • Initiating new drug therapies at home (such as Pulmozyme / hypertonic saline).
  • Providing advice and support by phone, text, email, or face-to-face.
  • Supporting children and families when having intravenous (IV) antibiotics at home.
  • Providing care for the children who have a portacath, which is a central venous access device (CVAD).
  • Assessing children when they have a wet cough. This involves obtaining a cough swab/sputum. Treatment can be oral, nebulised, or IV antibiotics, or a combination of these.
  • Starting children with CF on anti-pseudomonas treatment as soon as possible after it has been isolated on a cough swab/sputum.
  • Monitoring lung function when children have a cough (to assess the success of any treatment undertaken).
  • End-of-life care if necessary.
  • Teaching all involved about all aspects of the daily care children with CF need to keep them as healthy as possible (this includes schools, nurseries, and after-school clubs).
  • Providing specialist nursing expertise to all involved in the care of children with CF (this may take place in a community setting or in a hospital).
  • Brackley Area
  • Corby Area
  • Daventry Area
  • East Northants Area
  • Kettering Area
  • Northampton Area
  • Towcester Area
  • Wellingborough Area
  • North Northamptonshire
  • West Northamptonshire
  • Northamptonshire
Additional languages
Translation and/or Interpreting Available on Request
Age range
Suitable for ages from 0 to 18 years
Referral route
GP or Healthcare Referral
For people with
  • Genetic Conditions
  • Medical Conditions
Eligibility criteria
Health Condition
Provider category
Specialist Services - For those who require longer-term support


c/o Northampton General Hospital NHS Trust, Cliftonville
United Kingdom


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Last updated 22 March 2024