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Genetic Alliance UK

Genetic Alliance UK logo


Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions.

They are an alliance of over 200 patient organisations and aim to work with organisations and individuals to ensure that the needs and preferences of all people affected by genetic, rare and undiagnosed conditions are recognised, understood and met. They are also home to Rare Disease UK – the national campaign for people with rare diseases and all who support them – and SWAN UK (Syndromes Without a Name), the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK.

Genetic Alliance UK is a registered charity (no. 1114195).

National Organisation
Age range
Suitable for ages from 0 to 99 years
Referral route
No Referral Needed
For people with
Genetic Conditions
Eligibility criteria
Open to Everyone
Provider category
Specialist Services - For those who require longer-term support


Creative Works, 7 Blackhorse Lane
Waltham Forest
E17 6DS
United Kingdom


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Last updated 12 April 2024