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Syndromes Without a Name (SWAN) UK

Syndromes Without a Name (SWAN) UK logo


SWAN UK (Syndromes Without a Name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.

If you would like to be kept up-to-date with the work of SWAN UK, you can subscribe to their newsletter.

Genetic Alliance UK is a registered charity (no. 1114195).


National Organisation
Age range
Suitable for ages from 0 to 25 years
Referral route
No Referral Needed
For people with
Genetic Conditions
Eligibility criteria
Open to Everyone
Provider category
Specialist Services - For those who require longer-term support

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c/o Genetic Alliance UK, Creative Works, 7 Blackhorse Lane
Waltham Forest
E17 6DS
United Kingdom


Publication on the Local Offer does not endorse a provider, so please take reasonable steps to ensure that any service found on the Local Offer is suitable for your family member. For more information, please read our disclaimer.

Last updated 26 March 2024