Syndromes Without a Name (SWAN) UK
How to contact this service
Description
SWAN UK (Syndromes Without a Name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
If you would like to be kept up-to-date with the work of SWAN UK, you can subscribe to their newsletter.
Genetic Alliance UK is a registered charity (no. 1114195).
Resources:
- SWAN UK - Finding Support for You and Your Family - coming soon from Genetic Alliance
- Genetic, rare and undiagnosed conditions explained - (PDF 1.96 MB)
- Cost
- Free
- Locality
- National Organisation
- Age range
- Suitable for ages from 0 to 25 years
- Referral route
- No Referral Needed
- For people with
- Genetic Conditions
- Eligibility criteria
- Open to Everyone
- Provider category
- Specialist Services - For those who require longer-term support
Follow this service
Address
c/o Genetic Alliance UK, Creative Works, 7 Blackhorse Lane
Waltham Forest
London
E17 6DS
United Kingdom
Disclaimer
Publication on the Local Offer does not endorse a provider, so please take reasonable steps to ensure that any service found on the Local Offer is suitable for your family member. For more information, please read our disclaimer.
Last updated 14 January 2025